Archive for the 'Morse Family' Category



Jeremy’s Blood Drive

Yesterday was the first of three blood drives in Jeremy’s honor.  I am not eligible to give blood unfortunatley, but I did stop by to pick up some sweet treats from the bake sale.  When I arrived, the parking lot was full!   What an awesome sight!  Thanks to Christ Lutheran for the use of their gym and facility for hosting this event!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

And I can’t even imagine how many people were busy baking in Catonsville the past couple of days!  There were tons of goodies covering two huge tables…thanks to all who baked and bought!

UPDATE:  5/2 – The bake sale brought in over $1600!  Thanks to all who participated!!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

A fund has been started to help the Morse’s out with the accumulating medical costs as well as day-to-day household costs.  If you are interested in contributing, checks can be made out directly to Jeremy Morse and sent to me.  Please email or call me directly if you will be sending anything. 

Jeremy is in surgery this morning to try and remove more infected tissue from that nasty bedsore.  He crashed after a similar surgery SAturday, so please keep him and the surgeon’s in your prayers this morning.  Check http://www.caringbridge.org/visit/jeremymorse for updates…

Thanks again to all who showed their love for the Morse’s yesterday at the blood drive!

Miscellaneous Thoughts

I have been quite the blog slacker this week.  Much has been going on, but I just haven’t had a chance to sit down and blog.  So here is my week so far in a nutshell…

Monday-  I finally got to go see Jeremy in the hospital.  I can’t tell you how different it is to see it in person…even if you’ve seen the photos on the care page.  There are tons of machines, wires, tubes, pumps, you name it, all hooked up to that sweet little guy.  But he is plugging along.  His biggest hurdle now is a bed sore on his hiney…they think they are going to need to do skin grafts to close it, but the most important thing now is to keep it infection free.  They are hoping to get him on the transplant list in the next week, and he needs to be infection free.  Please keep the prayers coming and give blood if you can.

(Updated Thursday PM:  This bedsore is reall causing our boy some trouble.  Here is an excerpt from the Caring Bridge post:

“His oxygen levels dropped suddenly and they could not get them back up. It was pretty scarry. They put him on a “more serious” ventilator machine, and even with that they are having a hard time getting him oxygenated. He just came off ECMO becuase his lungs could not give him enough oxygen. They have to heavily sedate and paralyze him for this new ventialtor to work, which is also a step backwards. They think that he is “septic” and has some type of infection throughout his system. This happens sometimes after the type of surgery Jeremy had to clean out his bedsore. The “germs” in the bedsore tissue get disturbed and can get into the blood stream. They found bacteria and a somewhat rare fungus in the removed bedsore tissue, so they have given him antibiotics and and anti-fungal medicine. If the fungus got into his system, the doctors have said “that is very, very bad.” To date, they have never found any bacteria or fungus in any of the blood cultures they have taken, which is a good sign. We are very scared…”)

Tuesday night Rusty & I watched “Juno”.  If you have not seen this, do it NOW!  It is the story of a teenage birth mother, and it was just the smartest film I’ve seen in quite a while. I laughed so hard I thought I was going to wet my pants, and then I was crying.  A little “Napolean Dynamite”, a little “For Keeps”…just great.  And the soundtrack is on the top of my iTunes list now…just great all around!  I smile everytime I think about it.

Now we are preparing to take the boys to New York for the weekend.  This is the re-scheduled trip we didn’t take back in January.  We take the train up tomorrow and hit the American Museum of Natural History (Night at the Museum…Trent wants to see Atilla the Hun, and Graham wants to see Gum-Gum Dum-Dum), and then we tour NBC & Rockefeller Center Saturday.  We want to do the Statue of Liberty & Central Park in there somewhere, and can’t wait to see what cool resturants we can find. 

Get out and enjoy the weather!  And if it rains, rent Juno!  🙂

Blood Drive in Honor of Jeremy

BLOOD DRIVE

IN HONOR OF JEREMY MORSE

(4 month old son of Scott & Amy Morse)

 

WHERE:  CHRIST LUTHERAN CHURCH

              (IN THE GYM OF THE NURSERY SCHOOL)

              5700 EDMONDSON AVENUE

              BALTIMORE, MD  21228

 

DATE:    TUESDAY, APRIL 29TH

 

TIME:     2-8 P.M.

This is a scheduled event so please contact Jen Stauffer to sign-up.

 

jenstauffer@cavtel.net

410-788-6928

  

RED CROSS INFORMATION

*  From start to finish it takes about 1 hr. 15mins to donate blood.

*  There are some restrictions to donating blood including weight, medications, and recent travel.  Please check the Red Cross website at www.redcross.org to see if any of these exclusions apply to you prior to making your appointment, or call the Nurse of the Day hotline at 1-800-272-2048. 

*  If we have an overwhelming response, we have plans for a second blood drive in early May.

 

To learn more about Jeremy Morse please go to www.caringbridge.org and type in  jeremymorse

 

We need volunteers!  Please contact Jen Stauffer if you are interested.

 

A message from Scott & Amy:

We are so excited about the upcoming blood drive in honor of our son, Jeremy. This is truly a great way to reach out and help others who desperately need lifesaving blood donations.

There have been quite a few misconceptions floating around. First, EVERYONE is encouraged to participate regardless of blood type. The blood bank here at Hopkins uses an average of 800 units daily. There are many people just like Jeremy in need of lifesaving blood donations. People of all blood types not just one kind. Secondly, the blood donated will most likely not go directly to our son. The Red Cross will collect the blood and it will disperse the units to area hospitals. We will let you know if we need Jeremy’s specific blood type directly here at Hopkins. Last but not least, if you are unable to participate in Jeremy’s blood drive, don’t let that stop you from donating at another time and location. The blood is still very much needed in the area to help others. Please contact the Red Cross for further information.

We thank everyone participating for their compassion and generosity. We can’t wait to see just how many units are collected in Jeremy’s honor.

Amy and Scott

Keep Praying for Jeremy

One week has passed, and Jeremy continues to make progress little by little each day.  He has so many hurdles ahead, and more and more is being learned each day about what is going on in his body.  If you want to keep up with his progress, here is a link to a Caring Bridge website that Scott & Amy keep up each day:

http://www.caringbridge.org/visit/jeremymorse

Here is the latest entry followed by a tid-bit of info I could find on the VAD – Medow Heart that Amy mentioned he may be having put in on Saturday.  Please, please, please continue to pray and send his story to everyone so they can pray, too…

“Jeremy has had a peaceful day so far. Unfortunately, the chest x-ray did not show the doctors the amount of progress that they were looking for. However, we remain hopeful that given the amount of mucus removed and the difference in the ventilator settings, that we are moving in the right direction. They are hoping to do another broncoscopy later today and hope to remove even more mucus plugs from the lower part of Jeremy’s lungs. This should allow his lungs to recover even more. This challenge is ever so important!!! The doctors are hoping to put the VAD -Medows heart in place this Saturday morning. (remember God’s time not our’s, so we’ll see) Jeremy seems to be improving steady and slow, so we don’t want to rush him to much and risk regressing or causing another problem. The doctors have ruled out pleurosy, a condition which is fluid around the lungs, which would prevent them from inflating. Another factor could be the size of his heart which could block the lungs in the x-ray and not allow them to see them clearly. We should know more from the broncoscopy today.

Jeremy has been given a medicine that paralyzes his muscles to keep him still and a sedative to help him sleep. The nurses and echmospecialists are wonderful, compassionate individuals who read to him, hold his little fingers, stroke his forehead, and even groom his lovely hair. All above and beyond the protocols of care. They love him and are cheering him on with us. It comforts us beyond belief to know that they have become part of our family too. They comfort Jeremy when we cannot.

Let’s not leave our almighty father out of this either. We know in our soul that Jeremy is resting peacefully in his love and care. We have been selfish, asking God to give us signs that he is there and that he hears the prayers of us and all of you. He doesn’t have to respond, but he has. There have too many “God-instances” to count. Those we’ll discuss in another journal. We long for the day when Jeremy can tell about this intimate experience with Jesus.

Please keep the prayers coming and know just how very much we appreciate all of the support that we are receiving. Look up the Medows heart online, consider donating blood, and love those near and dear to you.

Amy and Scott”

Here is what I found online about the VAD:

The ventricular assist device (VAD), or “artificial ventricle,” is an internally implanted pump designed to aid a person with a failing left ventricle; unlike an artificial heart, it does not require removal of the patient’s heart. A version for temporary use was developed in 1964. In 1991 doctors implanted the first portable VAD; it was powered by a battery pack. Its pump used a special interior lining to promote the growth of a surface similar to that which lines the blood vessels, reducing the risk of the formation of blood clots, which can cause stroke.

Pray for Jeremy

My wonderful friend, Amy Morse (whose kids you must have seen here a hundred times), and her family need your prayers.  Her youngest son, Jeremy, is critically ill and is on life support at Johns Hopkins.  They have no idea as of this writing what is wrong with him, but he was in cardiac arrest for over an hour, and now machines are sustaining him.  Please, please pray for the Morse family and for the staff who is caring for him.  Our God is a miracle-worker, and we could use one of those right about now.

***UPDATE***(thanks, Joanie…) Wednesday 4/2 pm

Jeremy had surgery this afternoon and is doing well.  They relieved the pressure off of his left ventricle and biopsied his heart.  The next 48 hours are still very critical but they are hopeful.   Please continue to pray…

 

***UPDATE*** Thursday 4/3 pm

Jeremy is still struggling.  He is still on life support, his stats and counts are constantly fluctuating.  Results from the biopsy are still pending.  They are constantly working on him.  With every bit of good news comes some not so good.  Please keep the prayers going.  Even if this infection gets cleared up, it looks like he will still require hospital care, so it looks like he will be there for a while.  Pray for the doctors and nurses at Hopkins who are caring for him.  Pray for Scott and Amy and their families. 

Update from Jen Carmichael – Posted Friday 4/4 am: The power of prayer was seen again today in a powerful way! Jeremy initially had a set back this morning with increasing fluids & bleeding but the ICU team was able to stabilize him for the rest of the day. He has shown improvement today! His color is better, the bleeding has slowed, swelling has gone down & heart rate is better. His heart pressure is good & for the first time tonight his mother, Amy & I saw his chest rise with breathing. What an awesome site that we take for granted! Before, this was not happening because his lungs were so full of blood. Despite the good day Jeremy had, he is still very critical & the sickest patient at Hopkins. The ICU team said today was a very good sign but there will cont to be set backs with some days being harder than others. He is still on life support & will be for a while & the outcome is still unknown. They are trying to turn back the machines some so Jeremy can do a little work & see his response but they have to be careful not to push him too much. They are pretty sure the cause of the myocarditis is viral – all signs are pointing to this but they will not know for sure for several days. They may never know the exact virus if it is determined viral but have been able to rule some out. His parents, Amy & Scott are doing better. Amy is in a good place today & had a sense of peace. They both were better tonight & feeling good in their heart with faith that Jeremy will make it. What a little fighter he is! Amy & Scott will be setting up a Caring Bridge site. It is an online journal & people can write back to them in the “guestbook”.. It is a wonderful site & will be therapeutic to them. It will also help decrease the many phone calls they & the family are getting. The hospital is going to provide them with a laptop to use. I expect the website to be set up in the next couple of days. You can go to: www.caringbridge.org & type in Jeremy Morse to get to their site. I will let you know when it is set up & then I will stop with updates since the website will be the source you can go to at your choice. Many people have asked how to help. They will need assistance with meals starting the end of next week. Anyone that is interested can e-mail or call me & then I can send a schedule to her friend, Joan Robinson, that is coordinating meals. Ideas: You can take a prepared meal, send money for groceries or order carry-out. They live in Catonsville. Please feel free to e-mail or call me. If there is anything else anyone had in mind let me know. One of the main things that has helped Amy & Scott is knowing how many people are praying for their little baby boy. They wish they could thank each one of you!  Jen

***UPDATE*** Friday, 4/4 pm from Jen, Amy’s sister

The nursing staff was able to take a blood pressure today. The bleeding from his lungs has stopped for the time being (they are hopefull it will remain this way). They are giving Jeremy an IGB (antibiotic) and have stopped the medication for the bleeding in his lungs. Jeremy has a radial pulse, is moving when he is spoken to, moves when he is touched, and they can see his eyes moving under his eye lids. Jeremy’s brain activity is good. Tonight, they will slowly start giving Jeremy some nutrition. They want to thank everyone for their prayers and thoughts. Please continue to pray for Jeremy, and his family. Please also continue to pray for his nurses, doctors and the techs.

 

***UPDATE*** Monday, 4/7 from Caring Bridge website written my Jeremy’s mom, Amy (who, can I just say, is showing the most amazing strength and faith in God…I am so inspired by her!  I can’t even imagine what a trial this is for her…to have her baby fighting for life in the hospital and having three other kids at home who miss her terribly.  God is the only one who can sustain us through situations like this, and her ability to trust Him right now is amazing…)

(Click here to visit the site yourself and get updates right from Scott & Amy)

They warned us that there would days more difficult than others, today was by far one of them. We were able to get a lot of information today and it has taken a long time to process.

Let’s start with our blessings. A big hug and thanks goes out to our family, friends, and support people. We could not do this without you. Jeremy needs a “village” to get through ordeal and that includes all of you too. We are also incredibly thankful for the doctors, nurses, and echmospecialists directly involved with his care daily. You are all amazing and we know you are cheering him on too! We are in for the long haul. We are so proud of Jeremy. He is fighting the best way he knows how. Every day has been better than the day before. We ask for continued prayers for healing and recovery. We long for the day when we can hear our baby cry, hold him close to our hearts, and bring him home to our family. We are reminding Jeremy often of our unending faith in God and his will to be done with our son.

That being said, the biposy revealed more damage than we anticipated or hoped for which COULD make his recovery more difficult. We CHOOSE to hold strong and faithful that miracles happen every day and Jeremy’s recovery without further major intervention will be one of them. It is possible and the doctors are diligently preparing for the need of a Berlin heart device and/or a heart transplant.

The bottom line is that Jeremy is being held ever so gently in the hands of our Lord. He is comforting Jeremy in ways we cannot. Everything that happens will be in his plan and in his timing not ours.

Please continue to pray for our son and continue to send our story around to others you may know. Our precious little Jeremy needs all the prayers he can get. I will be selfish and say that Scott and I could use a little extra strength right now and our family is growing weary and tired. Please send prayers to sustain them and us.

 


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